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I have a rather rare disability known as Moebius Syndrome. I wrote this page for two purposes:
- I have accumulated enough circumstantial evidence to
conclude that my disabilities have a significant effect on my social
interactions. Hence I hope -- for the people around me -- if you stumble upon this
page, you would understand me a little better.
- If you have Moebius too, please do feel free to get in touch. I'm no aunt agony though.
My disabilities include the following:
- In addition to having my physical
appearance affected by Moebius Syndrome, I am not able to have
much facial expressions - smiling, frowning, raising
my eyebrows, etc. I am also asymmetric; I have more control over
my left eyelid than my right. I'm guessing this, and the fact that I
can't raise my eyebrows, sometimes makes people think I'm staring at
them.
- I
suffer from slurred speech, and this affects my effectiveness at verbal communication.
- Because of these physical limitations, I think it takes a while to
understand who I am. So let me save you some work -- I would describe myself
as a kind, warm but also rather introverted person. On the other hand, if you find that I am accommodating
and
generous with you, please do not misconstrue that to mean I am a
walk-over: I treat others with respect and compassion precisely because
having a disability teaches me how unkind humans can be towards one
another.
- I
have disabilities with my fingers/hands and arms. They are weaker and
significantly less agile than the average person's. I have no problems
typing this page, of course. But I have occasional problems with what
many would consider mundane everyday tasks, like getting my seatbelt
on and reaching into my back pocket for my wallet.
I am quite open to discussing my disabilities with people with non-malicious intent. Hence, if you know
me and have something to ask/talk about, please feel free to do so.
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